The Doctor's office selected today for the replacement of the exterior hanging Hickman catheter with a semi permanent under the skin Port catheter.
This meant that Sharon and I had to arrive at St. Vincent's Hospital at 6:00 AM this morning for the scheduled 8:00 surgery and then on to the Oncology Out Patient unit for the usual Monday blood work and IVIG infusion.
So I've got both sides of my chest taped up tonight.
The new Port required incisions to place it under the skin which is making me pretty sore right now but 'this too shall pass' in a few days.
I tapered off one of the antii-rejection prescriptions, Cyclosporine, on Saturday.
If the weekly monitoring shows I can continue without it, I expect that some of my blood counts numbers will improve even more.
My hair is taking it sweet ole time coming back in.
I keep explaining that I haven't gone to the Bruce Willis hair style.
Have a Safe and Enjoyable Labor Day weekend.
Monday, August 27, 2007
Monday, August 20, 2007
Monday, 8/20/07--Improvement
As mentioned in the previous post, we were delighted to have our daughter and son-in-love from Florida with us for a few days.
They really helped get some deferred projects completed.
As usual, when you spruce up one area, it brings other areas to your attention so we still have a pretty long 'Honey Do" list.
I'm grateful to be gaining strength daily--ventured out on the bicycle for the 1st time last week for a quick tour of the neighborhood--haven't tried to walk too far or try to jog any yet.
Believe the Doctor is to schedule replacing the exterior hanging Hickman catheter with a semi permanent under the skin Port catheter within the next few weeks.
Thanks for continuining to remember us in your thoughts, prayers and encouragement.
They really helped get some deferred projects completed.
As usual, when you spruce up one area, it brings other areas to your attention so we still have a pretty long 'Honey Do" list.
I'm grateful to be gaining strength daily--ventured out on the bicycle for the 1st time last week for a quick tour of the neighborhood--haven't tried to walk too far or try to jog any yet.
Believe the Doctor is to schedule replacing the exterior hanging Hickman catheter with a semi permanent under the skin Port catheter within the next few weeks.
Thanks for continuining to remember us in your thoughts, prayers and encouragement.
Saturday, August 11, 2007
Saturday, 8/11/07--Favorable Percentage of donor T-cells.
More good news this week.
The results of the blood test indicate that 98% of the T-cells are from my sister, Nancy.
They want about 95% from the donor and not more than 5% from me.
Sometimes it takes a little while to achieve that balance.
So I won't need a booster infusion of Nancy's frozen T-cells at this point in time.
We're glad to have our daughter and son-in-love Thom with us for a few days.
We had hoped for some cooler less humid weather to give them a break the heat & humidity of Central Florida.
They said they were coming to work and have they ever. They've been doing so many things that we had not gotten done so far this year. ie. Paint the deck & mailbox, trim the shrubs, wash the windows, etc. etc.
As the dosage is reduced on some of my medications, I seem to be gaining strength and endurance daily :-) .
Have a Great week.
The results of the blood test indicate that 98% of the T-cells are from my sister, Nancy.
They want about 95% from the donor and not more than 5% from me.
Sometimes it takes a little while to achieve that balance.
So I won't need a booster infusion of Nancy's frozen T-cells at this point in time.
We're glad to have our daughter and son-in-love Thom with us for a few days.
We had hoped for some cooler less humid weather to give them a break the heat & humidity of Central Florida.
They said they were coming to work and have they ever. They've been doing so many things that we had not gotten done so far this year. ie. Paint the deck & mailbox, trim the shrubs, wash the windows, etc. etc.
As the dosage is reduced on some of my medications, I seem to be gaining strength and endurance daily :-) .
Have a Great week.
Saturday, August 4, 2007
Saturday, 8/4/07--Good News
We were delighted to get a call from the Doctor's office on Wednesday that the results of the Bone Marrow biopsy procedure done on the previous Thursday indicated "No evidence of any Acute Leukemia cells."
That was Super Good News :-)
We're waiting on the blood tests results to indicate what percent of the present blood T-cells are my sister's and what percent remain from my blood prior to the Transplant.
Believe they'd like it to be about 95% from the donor and 5% from me but it may take a little while to achieve that balance.
Results should be available about mid week.
We continue to make a long visit to the Oncology Out Patient unit on Mondays and a shorter time on Thursdays.
Continued Best Wishes to You !!
That was Super Good News :-)
We're waiting on the blood tests results to indicate what percent of the present blood T-cells are my sister's and what percent remain from my blood prior to the Transplant.
Believe they'd like it to be about 95% from the donor and 5% from me but it may take a little while to achieve that balance.
Results should be available about mid week.
We continue to make a long visit to the Oncology Out Patient unit on Mondays and a shorter time on Thursdays.
Continued Best Wishes to You !!
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